CONALLSTRONG

Team Captain CONALLSTRONG 2017 Parkway Run & Walk

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Hello All,

We are doing it again this year and need your help making the CONALLSTRONG team the largest team for participants for the 3rd year in a row and one of the top 3 overall non-corporate fundraising teams.  We are raising money to help fight childhood cancer and ultimately fund lifesaving research and innovative care at Children's Hospital of Philadelphia, an organization that has enabled our son, Conall, the meds and the protocols to fight this cancer that has changed his life, our life and many of the lives of people that Conall has touched over the past 2.5 years since his battle began in March 2015  

As most of you who know us and Conall's story; Conall's cancer presented in the most unusual way. His white blood cell production was "shut down" first vs. his red blood cell production.  So, Conall outwardly presented as a healthy happy child without the standard signs of leukemia: nose bleeds, bruising, fatigue etc.  But inside, as his white blood cells dropped in number, he was WIDE open for any type of infection ; Conall actually went into Septic Shock in only 12 hours after  coming into our room late one night with a fever.  We almost lost him to the septic shock, however, the unbelieveable fighter that he his, he came out of it, CONALLSTRONG.  However, not without life-changing effects.  Conall had to have both his legs amputated below the knee and all the fingers on his right hand,  All the while, beginning his fight against cancer or "yucks" in his blood as we called.  Leukemia treatment is 3.5 years for boys and thankfully we are 2.5 years in and Conall is doing great.  Even playing some Gaelic Football this summer!

All of this is due to the incredible work and research of the CHOP Cancer Center.  Less then 10% (i believe it is closer to 5%, need to fact check that) of National Government Funds is earmarked for Childhood Cancer research.  This is why it is so CRUCIAL for organizations like CHOP Cancer Center to receive the support of donations.

More personally, as difficult as this has been for Conall and our family - it is so awesome to see so many of our family, friends, friends of friends, friends and co workers of our family, on and on - come together for this great cause.  IF you can join the team and get down to the Parkway Run on a Sunday, September 24th morning - please register and come down.  I guarantee you - you will be inspired by all of these kids who are fighting this sh*t !  You will see survivors!  You will see some families who have lost their child to cancer, however, they still create a team and fight for a cause every year.  I guarantee you will leave there inspired and feeling blessed and grateful and wanting to come back next year.  It is only a 5k or less walk / run you are finished before noon on a Sunday, we are all busy but this is worth it. You can do it.   It is a great event.  We really enjoy seeing all of you and making connections, some with people who we havent seen in years and it takes something like this to reunite.  You will make new friends and connections.  More importantly,  Conall loves it and it goes to an absolutely world class organization. 

If you can't come down, then please donate to team!  Every donation counts!

FYI - Just in the last couple of months, the FDA has approved new gene therapy for kids and adults for relapsing cancer.  That research was initiated right here at CHOP and its outcomes are incredible.

Why this is so important to us:

Patients Need Us 
Parents shouldn’t have to hear the words “your child has Pre-B Acute Lymphoblastic Leukemia.” However,  1 in 285 children in the U.S. will be diagnosed with cancer by the time they’re 20 years old.

Breakthroughs Are Upon Us
CHOP’s Center for Childhood Cancer Research is one of the most distinguished research programs in the nation. Every day, CHOP’s Cancer Center team is redefining what a cancer diagnosis means for a child. The center offers the most advanced therapies available anywhere in the world, including cutting-edge clinical trials that reprogram the body’s own immune system to fight cancer.

How You Can Help Make an Immediate Impact Today
100% of every donation helps CHOP make important breakthroughs in understanding the causes of childhood cancer – and developing treatments that improve cure rates.

Thank you for your support! 

Love,

CONALLSTRONG

 

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