Team Captain HEART OF A RYAN Philly Spin-In 2020


A Message from Nico's Parents

As proud parents of our Heart Warrior son, Nico Ryan, our family is raising money to support innovative cardiac research for kids at Children’s Hospital of Philadelphia (CHOP). With your help, we can better understand the causes of pediatric heart disease, develop new treatments, improve long-term outcomes and offer new hope to families who need it most.  THANK YOU in advance for your generosity and support to help save the lives of other children like Nico.

Nico’s Story

CLICK HERE to watch our Story of Nico-HEART OF A RYAN 

Nico's heart condition was diagnosed before he was born at the 20-week ultrasound.  Doctors discovered he had 4 major heart defects including the following:

  • PFO-hole in the upper chambers of the heart

  • VSD-massive hole in septal wall in lower chambers of the heart

  • Hypoplasia of the Aorta-narrow aorta

  • Coarctation of Aorta- aorta is kinked like a hose restricting normal blood flow to the rest of the body

Two days after Nico was born, he was successfully treated at CHOP with open-heart surgery.  Today, he’s a thriving little boy who’s hitting his developmental milestones, enjoys roughhousing with his “DaDa” and playing with his mom and big sister.  Though only 10 months old, Nico is a huge Philadelphia Eagles football fan and smiles every time he hears the team’s fight song.  Nico’s family are in awe of their “miracle” baby and eternally grateful to the team at CHOP, who have become their second family.

Why we Ride

  • Little hearts need us:  Parents shouldn’t have to hear the words “your child has congenital heart disease.” Yet, 1 in every 120 babies born in the U.S. are diagnosed with congenital heart disease.
  • Together, we’ll create a breakthrough for every child: “I can’t think of anything more important than taking a child who has a fatal heart disease and getting them through to live to be a grandparent,” says Matthew Gillespie, MD, Interventional Cardiologist at CHOP. “We have in recent years made incredible, important breakthroughs that nobody else has had in some of the most important issues affecting our patients. We really need the support of philanthropy to make that possible.”
  • How Can You Help

By donating to support pediatric research at Children's Hospital of Philadelphia, you are offering sick children and their families hope for a future free of disease.