Our incredible daughter Daisy was born on April 20, 2016 at 32 weeks and was thrust immediately into a fight for her life. Diagnosed with a very rare condition called isolated fetal ascites in utero, her body was filled with amniotic fluid which left little room for her vital organs to develop. With the support and guidance of medical teams across Jefferson University Hospital and the Children's Hospital of Philadephia, Daisy survived cesarean birth and was transitioned to Neonatal Intensive Care where she lived for eight weeks learning slowly how to regulate her body temperature, breathe on her own and feed. Over the next year, the team at CHOP in the Feeding Clinic helped diagnose Daisy's feeding issues and later counseled us toward normal feeding. In 2018, the CHOP team came to our rescue again when we learned Daisy had bilateral hip dislocations that would require surgery.
The Childrens Hospital of Philadelphia has become a second home and a second family for us during some of the most difficult times of our lives. The staff have given us the highest quality care, attention, compassion, communication and service. We could never begin to repay our debt to the wonderful people who make CHOP the world-renowned institution that it is. We can, however, spread the word about the incredible things they do for families like us - and we are committed to helping raise money for research and patient care to support the journeys of children like Daisy. Please join us and give what you can.