We are raising money to conquer childhood cancer by supporting groundbreaking research and innovative care at Children's Hospital of Philadelphia (CHOP). Join us today!
Why this is important to our team:
In November of 2019, we learned our little Sloaney had B-Cell Acute Lymphoblastic Leukemia. Following her diagnosis, she immediately began an intense treatment plan that will continue through January of 2022. Sloane has amazed and inspired us every day with her strength as she has bravely battled cancer for nearly half of her life.
From the time she was diagnosed until her second birthday in July 2020, Sloane’s daily routine certainly was not like most toddlers – while she still had playdates in the park, went to music class, and participated in most of the fun things kids would do (pre-COVID) – she was also receiving intense chemotherapy (sometimes daily), drinking her “giggle juice” before undergoing general anesthesia monthly (and at times weekly) for spinal taps, learning to swallow 10 – 20 mL of oral meds a day (which she is now a pro at), and making countless visits to the outpatient clinic at CHOP. During this time, CHOP has started to feel like a second home for us. Not only for the obvious reason that we would spend so much time there, but more so because of the incredible staff that goes above and beyond to care for Sloane – affectionately known as Sloaney on the oncology floor. For the last year, we've been in a slightly more normal routine as Sloane has now been in the "maintenance" phase of her treatment plan. The trips to clinic and treatment cycles are less frequent, but we are focused on rebuilding strength she lost through this entire process. We are so proud of all the work Sloane puts in to "JUMP!" and "Mommy I climbed the stairs all by myself!" She really is our little warrior.
This is our second year participating in the Parkway Run & Walk and we are so incredibly proud and excited to announce Sloane has been chosen as a Parkway Run & Walk Ambassador. Unfortunately due to the current wave of COVID, the in-person Parkway Run & Walk has been cancelled. We were so looking forward to seeing to everyone and celebrating our Sloaney in-person, but we hope you will join us on our month-long virtual miles challenge and help us reach our miles goal!
We definitely need a reason to dust off our Peloton and there is no better motivator for us than supporting the Cancer Center at CHOP. For every mile #TeamSloaney rides on the Peloton during the month of September, we will personally donate 10 cents. CHOP has been our second home for the last two years - and because of COVID, we have quite possibly spent more time with Sloane’s doctors and nurses at CHOP than most of our family and friends. The time spent there has just reinforced our belief that CHOP is truly the best place of care for Sloane. We also continue to hear so many stories from others about the exceptional care they’ve received there. We are so fortunate to live in such close proximity to the #1 pediatric oncology program in the country, and like to joke that we could never possibly move because being more than 1 mile (.92 miles to be exact) away from CHOP would be too far! It is also very comforting to know that even when Sloane completes her treatment in January 2022, CHOP still provides care and extended support through its survivorship program. Considering how close this milestone is, we are scared, nervous and excited for Sloane to finish her treatment course; but more so than anything, we are excited for Sloane to get back to doing more normal kid things like going to birthday parties or playing with friends, instead of getting excited about taking 10 – 15 syringes of oral medicine a day or drawing her own labs at clinic after they access her port. The only tears at CHOP happen when we tell her it is time to leave!
As we mentioned, we are so incredibly proud that Sloane has been chosen as one of CHOP’s Patient Ambassadors for the Parkway Run this year. You can see all the patient ambassadors at the link below. It is truly inspiring to read all their stories. We hope that more publicly sharing Sloane’s story helps bring the necessary awareness and fundraising support for childhood cancer research and putting an end to this horrible disease.
We continue to be in awe of Sloane’s strength and positive attitude despite everything she has experienced since her leukemia diagnosis in November 2019. She is now a very outgoing three-year old and getting healthier and stronger by the day.
Please join us again in supporting ongoing cancer research at CHOP and finding a cure. It is our hope and mission that all children and their families have access to the kind of life-saving care Sloane is receiving right now. Whether through donation or joining Team Sloaney to achieve our miles goal, we’d be thrilled to have you be a part of this amazing cause.
From the bottom of our hearts, we cannot thank you all enough for your continued support. We are so grateful to be able to share positive news about Sloane's progress and hope you will be a part of Sloaney's team in continuing the fight against pediatric cancer.
Jon, Lyndsay, and Sloane
PATIENTS NEED US: Parents shouldn’t have to hear the words “your child has cancer,” but 1 in 285 children in the United States will be diagnosed with cancer by the time they are 20 years old.
BREAKTHROUGHS ARE UPON US: Every day, CHOP’s Cancer Center team is redefining what a cancer diagnosis means for a child. The center offers the most advanced therapies available anywhere in the world, including cutting-edge clinical trials that reprogram the body’s own immune system to fight cancer. CHOP’s Center for Childhood Cancer Research is one of the most distinguished research programs in the nation.
How You Can Help:
MAKE AN IMMEDIATE IMPACT TODAY: 100% of every donation to the 2021 Parkway Run & Walk, presented by Citadel, will help CHOP make important breakthroughs in understanding the causes of childhood cancer, developing new treatments that will improve outcomes for children, and one day may lead to a cure for childhood cancer.
Thank you for your support!