JACKSTRONG/Rally for Rylee

2017 Parkway Run & Walk

Donate to our Team


Thank you so much for visiting our page! Love, Jack and Rylee

Jack was diagnosed with Acute Lymphoblastic  Leukemia in May of 2013 at 2 ½ years old. Throughout his battle,  Jack  endured months on end spent inpatient for treatment, countless blood and  platelet transfusions, bone marrow biopsies, needles  to his port and dressing changes, chemo, radiation, and the list goes  on. After 8 months of traditional treatment, Jack had still not  reached remission so his best chance at survival was to have a bone  marrow transplant. We are truly blessed to have received  our miracle of Michael being a perfect match for Jack. There’s only a 1  out of 4 chance of having a perfectly matched sibling; so we struck  gold for sure.  A very special bond will forever be shared between  brothers. 

Jack is now 3 ½ years in remission. He is riding  boogie boards with his big brother, building sand castles with his  little sister, reading up a storm and getting ready to start 1st  grade.  Jack’s treatment has ended, but the  scars still remain and we continue to battle for those children and  families that are still in the trenches of this horrific disease. It is  beyond heartbreaking to see what a child with cancer has to endure  during their care, as well as the long term side  effects that they may have to endure for the rest of their life as a  result of the harsh treatments. We truly appreciate all of the continued  prayers for Jack’s good health. Hope, faith, and love from the best  family and friends around carried us through our  journey. This will be our 4th year walking/running in  support of the Cancer and Survivorship Programs at CHOP and we are so  excited to be combining forces with our friends Rally for Rylee this  year! It is truly a heartwarming morning out and the  continued support means the world to us! 

------------------

Hi. My name is Rylee. I was diagnosed with very  high risk b-cell acute lymphoblastic leukemia with a rare MLL mutation  when I was just 14 months old; July 17, 2015. I have spent most of my  life in and out of hospitals and doctors offices.  I am nearing my end of treatment day and I'm so excited to feel good  again be able to be a normal kid. My last dose of chemotherapy with be  on October 27th. My doctors are amazed at how well I have done, if I  were a little older at diagnosis I would have gone  to transplant. My family is so very happy that there has been so much  advancement in immunotherapy, specifically CarT! My killer T cells were  taken and stored in the lab so that if my sickness returns they will  attack all the bad cells in hope of saving my  life! CHOP along with Penn have the leading team in the world for this  type of therapy!

Jack and I need your support to give back to our  wonderful CHOP oncology unit. Please join our team to help raise  awareness for our amazing doctors to do the much needed research to cure  cancer for all kids!

 

 

 

 

 

 

 

Here are some facts provided by CHOP:

Patients Need Us
Parents shouldn’t have to hear the words “your child has cancer.” However,  1 in 285 children in the U.S. will be diagnosed with cancer by the time they’re 20 years old.

Breakthroughs Are Upon Us  
CHOP’s Center for Childhood Cancer Research is one of the most distinguished research programs in the nation.Every day, CHOP’s Cancer Center team is redefining what a cancer diagnosis means for a child. The center offers the most advanced therapies available anywhere in the world, including cutting-edge clinical trials that reprogram the body’s own immune system to fight cancer.

You Can Help Make an Immediate Impact Today
100% of every donation will help CHOP make important breakthroughs in understanding the causes of childhood cancer – and developing treatments that improve cure rates.

Thank you for your support!

 
 

Get The Word Out