Thank you so much for visiting our page! Love, Jack and Rylee
Jack was diagnosed with Acute Lymphoblastic Leukemia in May of 2013 at 2 ½ years old. Throughout his battle, Jack endured months on end spent inpatient for treatment, countless blood and platelet transfusions, bone marrow biopsies, needles to his port and dressing changes, chemo, radiation, and the list goes on. After 8 months of traditional treatment, Jack had still not reached remission so his best chance at survival was to have a bone marrow transplant. We are truly blessed to have received our miracle of Michael being a perfect match for Jack. There’s only a 1 out of 4 chance of having a perfectly matched sibling; so we struck gold for sure. A very special bond will forever be shared between brothers.
Jack is now 3 ½ years in remission. He is riding boogie boards with his big brother, building sand castles with his little sister, reading up a storm and getting ready to start 1st grade. Jack’s treatment has ended, but the scars still remain and we continue to battle for those children and families that are still in the trenches of this horrific disease. It is beyond heartbreaking to see what a child with cancer has to endure during their care, as well as the long term side effects that they may have to endure for the rest of their life as a result of the harsh treatments. We truly appreciate all of the continued prayers for Jack’s good health. Hope, faith, and love from the best family and friends around carried us through our journey. This will be our 4th year walking/running in support of the Cancer and Survivorship Programs at CHOP and we are so excited to be combining forces with our friends Rally for Rylee this year! It is truly a heartwarming morning out and the continued support means the world to us!
Hi. My name is Rylee. I was diagnosed with very high risk b-cell acute lymphoblastic leukemia with a rare MLL mutation when I was just 14 months old; July 17, 2015. I have spent most of my life in and out of hospitals and doctors offices. I am nearing my end of treatment day and I'm so excited to feel good again be able to be a normal kid. My last dose of chemotherapy with be on October 27th. My doctors are amazed at how well I have done, if I were a little older at diagnosis I would have gone to transplant. My family is so very happy that there has been so much advancement in immunotherapy, specifically CarT! My killer T cells were taken and stored in the lab so that if my sickness returns they will attack all the bad cells in hope of saving my life! CHOP along with Penn have the leading team in the world for this type of therapy!
Jack and I need your support to give back to our wonderful CHOP oncology unit. Please join our team to help raise awareness for our amazing doctors to do the much needed research to cure cancer for all kids!
Here are some facts provided by CHOP:
Patients Need Us
Parents shouldn’t have to hear the words “your child has cancer.” However, 1 in 285 children in the U.S. will be diagnosed with cancer by the time they’re 20 years old.
Breakthroughs Are Upon Us
CHOP’s Center for Childhood Cancer Research is one of the most distinguished research programs in the nation.Every day, CHOP’s Cancer Center team is redefining what a cancer diagnosis means for a child. The center offers the most advanced therapies available anywhere in the world, including cutting-edge clinical trials that reprogram the body’s own immune system to fight cancer.
You Can Help Make an Immediate Impact Today
100% of every donation will help CHOP make important breakthroughs in understanding the causes of childhood cancer – and developing treatments that improve cure rates.
Thank you for your support!