Childhood cancer is the leading cause of death by disease in children under the age of 15 in the U.S. One in 285 children in the U.S. will be diagnosed with cancer by the time they are 20 years old. Every year, an estimated 250,000+ new cases of cancer affect children under the age of 20 worldwide. These are just a few facts about this awful disease. What is the most disbursing fact is, Childhood cancer research is vastly and consistently underfunded receiving ONLY 4% of federal funding; this is INSANE!!!!! Therefore, we all need to come together and do whatever we can to help raise money for research.
Scott's Hope is named after Scott Thomas Batcho who was born December 11.2011. Scott was born with a rare disorder called Rubenstein Taybi Syndrome which causes not only neurological and physical delays it also comes with a lot of health problems including cancer. 10 days before Scotts 1st birthday he was diagnosed with Stage 4 High-risk Neuroblastoma. After what seemed like a lifetime of treatments we were told in September of 2013 that he was finally in remission!! During Scotts immunotherapy, he had his routine scans which to all our surprise the scan showed the cancer had come back in his brain, he was showing no symptoms at this time. With it coming back in the middle of treatment we knew it was going to be extremely aggressive and growing rapidly; at this point, there was not much the doctors could do. After getting a second opinion and receiving the same answer we decided to go with hospice where they kept evaluating him and when he would start showing symptoms they would keep him comfortable. January 2,2014, we left for Disney world where we had an amazing time and Scott was a normal 2-year-old little boy. We came home January 6,2014; Scott Sadly passed away at 7:41am January 7,2014. Scott was just 2 years old when he passed away; his entire life consisted of doctors and long hospital stays but he was always happy and laughing. Scott touched the hearts of everyone he encountered, we were all lucky and blessed to have had him in our lives even if was for a short amount of time. I pray that one day no more families go through the pain and emptiness we do every day.
No child should have to endure the pain of this awful disease and no parent should have to endure the pain of watching their child suffer and/or losing their child. If we could all come together and raise money for Childhood Cancer Research, hopefully there will be a day they are able to come up with a treatment that is not so harsh for their little bodies along with no more children losing their battle to Cancer.
The Parkway Run & Walk is a 5K Run & 2K Family Fun Walk that benefits pediatric cancer research and care at Children's Hospital of Philadelphia, ranked the #2 children's hospital by U.S. News & World Report.
Pediatric cancer strikes 1 in 285 children. Your support will directly fund our cancer research and survivorship programs and make an incredible difference in the lives of children with cancer. Please join me on Sunday, Sept. 24 and help us fight childhood cancer!