Rosie's Rockin' Rebels

2018 CHOP Buddy Walk®

Rosie's Story

Our Rosie Girl, is the HEART and the JOY of our family.  She came into our ordinary family of 5, 10 years ago and made us EXTRAORDINARY.  Rosie is the youngest of our four children and was the final piece of  our puzzle.  Rosie was born with Down syndrome.  In her short 10 years of life she has overcome many obstacles.  Not limited to but including open heart surgery at 2 months old, many hours of specialized therapies, and a more recent diagnosis of Alopecia totalis (she lost all her hair).  However, she NEVER lets anything stop her.  She is always smiling, always laughing, ALWAYS HAPPY.  Rosie has always been motivated to be like her siblings, to do what they are doing.  Her 3 siblings, Giovanna, Anthony, and Sofia have been the BEST therapy she ever could have had.  Rosie has been attending regular education schooling since preschool.  She is in 5th grade this year, reading, writing, and doing math along side of her typical peers.  She also participates in dance, theater, and sports with both her special needs and typical friends.  

Rosie is a vibrant ball of energy.  She loves to dance, sing, and perform continuously.  Karaoke is her favorite-especially singing to TAYLOR SWIFT!!!!!  She also enjoys reading. We have always called her our "Little Librarian."  She loves all things Disney, particularly the princesses.  She loves the ocean and her favorite place "LONGPORT." Lastly, Rosie LOVES her family.  She is always readily available to provide support, check on a boo boo, or give a HUG.  She truly is our AMAZING girl.  Anyone who meets her is touched by her.

Rosie has taught us to SLOW DOWN, CELEBRATE every milestone and victory, and to FIND JOY in the all the little things in life.

We walk in the CHOP Buddy Walk® to support Rosie and all her peers like her.  Please join us in this wonderful EVENT.  

Thank you for your love and support,

The Marchese Family

Your donation directly supports CHOP's Trisomy 21 Program.

The CHOP Buddy Walk® is the sole fundraiser for the Trisomy 21 Program: CHOP’s Trisomy 21 Program, which cares for more than 1,200 children and 300 adults annually, would not exist as it does today without the tremendous support of the CHOP Buddy Walk® & Family Fun Day.

The CHOP Buddy Walk® provides hope for tomorrow for children with trisomy 21, also known as Down syndrome, the most frequently occurring genetic syndrome in the United States. One in every 800 children are born with Down syndrome, and they often face an uncertain future. These children are at greater risk of developing chronic and life-threatening conditions such as heart disease, bone deformities, neurological, gastrointestinal and endocrine disorders, as well as feeding and developmental disabilities.

How Can You Help?

By donating and helping me support:

  • Ongoing clinical care and coordination for children and adults with Down syndrome and their families
  • New assessment tools to identify potential issues and intervene early
  • Continuing education for families, medical providers and community members
  • Transformational research to improve the quality — and quantity — of life for individuals with Down syndrome

With your support, babies born with Down syndrome can experience the many joys of childhood — and flourish in adulthood.

Thank you!

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